New year, new book?

If declaring a New Year’s resolution out loud helps you be accountable for it, I’m here for it, dear readers. About half way through the book I co-wrote with Shahla, I recognized the need for a book for parents of adults with disabilities. A book about transition.

For parents sending their grown child with a disability out into the world, the word “transition” has become the shorthand for this journey. The word is both dead-on accurate and completely wrong.

Most families start planning for transition long before a high school graduation. There is a lot to think about. What’s next—a workshop, job placement, vocational training, college? Where will they live? How can we find adult health care providers to replace the pediatric team? What other services will they need as an adult? Where will the money come from?

All these questions deserve answers, even though the resources needed to support choices and pursue dreams after high school are often different than those available in school. If those resources even exist. Many families describe transition planning as going off a cliff.

Our family’s journey felt like that sometimes. But the more I tried to think about transition as a journey, the more it felt like we could build resilience.

Sam says his New Year’s resolution this year will be building resilience. I think he understands where we are now and where he wants the path to go.

Sam and other young adults with disabilities deserve to be surrounded by people who respect and honor their agency and humanity, no matter what long-term supports they need.

The truth is, we all need support of one kind or another, especially as we age.  Some support flows readily from modern life—grocery delivery, cleaning services, public transit. Other connections can be elusive—meaningful friendships, helpful neighbors, extended family relationships. Yet we know that any community can grow stronger when each and every person makes their full contribution to its betterment. That’s where resilience comes from.

That will be the purpose of this new book, harnessing the “big ideas” families need  to make transition feel less like going off cliff and more like taking flight.

Oh, and my other resolution will be to finally learn how to make pie crust. Tips welcome.

 

 

8 Comments

  1. Tom Spencer on December 22, 2023 at 4:14 am

    Good for you and the reading public too.

  2. Peggy on December 22, 2023 at 4:18 am

    Thanks, Tom. Merry Christmas!

  3. Annette Fuller on December 22, 2023 at 1:41 pm

    I love the topic of this upcoming book! Building resilience is such a great goal. Best wishes to both of you on these missions.

  4. Ann Hatch on December 22, 2023 at 3:15 pm

    Spot on. Looking forward to your new book and the lessons we all can learn in life.

  5. Frances on December 24, 2023 at 10:50 pm

    Looking forward to the new book! Also, using a sugar cookie recipe makes for a really good and easy pie crust.

  6. Peggy on December 26, 2023 at 7:00 pm

    What a great tip, Frances. Thank you!

  7. Nancy LeMay on December 26, 2023 at 10:29 pm

    You’re the perfect person to write a book to assist other parents approaching or facing the cliff. Go for it!

  8. Peggy on December 27, 2023 at 8:25 pm

    Thanks, Nancy. For now, I will just keep writing in the hopes that a book will appear on the pages.

Leave a Comment





This site uses Akismet to reduce spam. Learn how your comment data is processed.