Always starting at ground level

Sam has asked me several times in the past week how he can search for a job for his coop education credit next semester. That’s all that’s left between him and graduating from North Central Texas College with a technical degree, and finding a job.

For millions of other parents, this is the part where your child flies. They’ve laid the foundation in college, made loads of connections, worked with their college placement office, gone to job fairs, sent out resumes, interviewed, and got a job. You just get to sit back and watch the beauty of that butterfly unfold.

Not for kids like Sam. The world doesn’t know what to do with his smarts and his expertise because it comes in an unusual package. He is a hard worker, congenial, reliable — just ask the folks at Albertsons where he’s been sacking groceries for the last five years.

We planted a couple of seeds early in the semester, hoping some support for his upcoming job search will take root. But I’ve traveled this road so many times before.

I know what it’s going to take. I’ve got to stop everything else I’m doing (and as the single working mom of three, running a farm, threatened by the foulest kind of industry next door, it’s pretty effin’ busy around here) and devote hours and weeks and months of energy to help him get this going.

He deserves it. I want to be able to look at myself in the mirror, but give me a minute to shake my fist at the sky first.

The theory of self-reference

I’ve often wondered why we don’t hear much about the possibility that artificial hormones play a role in the rise of autism rates.

I couldn’t tolerate birth control pills and wrote about the experience, in relation to Sam’s autism, in my book. To me, hormones could explain why, until recently, autism was in first-born males four out of five times. It could explain why the uptick in recent years. It could explain why more girls now, and not just boys. It could explain why a recent university study found more occurrences among the wealthy

Like being rich causes autism. No one believes any chicken laid that egg. But it is well-known that the wealthy have better access to birth control options.

Yet, people keeping beating that vaccination horse, even though it’s been looked at rigorously for the past decade and no one has found a solid link. And lately, Vitamin D deficiency is all the rage.

I’m skeptical any causation theory if the proponent follows their theory with a “treatment” protocol, or hopes to file a class action lawsuit. Yeah, right. I’m not buying it.

From the theory of self-reference — in other words, no scientific basis whatsoever — I still want to ask, why aren’t we looking at the effect of artificial hormones?

I need this support but don’t have it

If you’re the parent or caregiver for a young person, age 12 to 22, with a disability, you, too, can fill out this national survey about supports your family has and supports you need.

http://www.fastfamilysupport.org/

I just finished it. It will be a really easy survey for Texas parents, filling page after page by clicking the button that says, “I need this support but don’t have it.”

UPDATE: And Saiqa Akhter didn’t get any either. Godspeed to little Zain and Faryaal.

Cows, milk and school economics

We’ve done pretty well teaching our kids the value of money, getting them from the allowance stage all the way to their first credit card offer, one or two of which came with spending limits higher than our own.
Sam manages his own earnings and expenses. We had a scare when he first turned 18 and we helped him get a debit card. He lost it at the dentist’s office several months later and we scrambled to shut everything down before the person who “found it” bought more than a tank of gas. But sitting down with the Denton police to file a report made an impression on Sam, and he hasn’t lost the card in the four years since. He likes Microsoft Money and its tools that help keep track. He asks me a question from time to time, so I know he’s thinking about his savings and taxes, too.
Frankly, he spoiled me a little. He’s not much of a “consumer” and likes his clothes well-worn. Too well-worn, sometimes.
The two younger kids are just as capable, but school demands make it difficult for them to come off as savvy. Summer is here, so I haven’t heard “I need $5-10 for lunch after the track meet/band contest/play practice,” or “Can you write a check for $15 to buy a club t-shirt/photo/bucket of cookie dough” for several weeks now.
Our tax relief with the superintendents’ victory over Robin Hood and his merry men in the Texas Legislature felt particularly short-lived these past several years with the kids in high school.
All’s fair in love and politics until recorded votes, yet I couldn’t blame the lieutenant governor for the local rule that required my daughter to purchase a catered pasta-and-beef vinaigrette because no sack lunches were allowed on the bus to the band contest. Thankfully, that rule was short-lived, too.
When the children were young, I was happy to show my support for my children’s education and their teachers. The supply lists got longer as they got older, and the bundles got more expensive each year. The year the tab came to $300 was the last I bought supplies as part of a PTA fundraiser. After that, I tried to reuse. We adopted the phrase, “shop the house.” The kids scrounged and traded first, crossing stuff off the supply list before we went to the discount store to get the rest.
One troubling year, a teacher asked us to replace Sam’s missing supplies, such as scissors and tape, several times before she discovered other children were shopping at his desk.
Some items we bought — construction paper, paper towels, tissues, hand sanitizer — were going into a shared stash in the supply cupboard. I wanted to rebel when I saw the mountain of paper towels and facial tissues. I also wanted to trust the teachers, but a box per child, maybe two, but not three, seemed like it ought to do for the year.
A year later, I looked at the number of No. 2 pencils on the supply list and did the long division myself – it worked out to a pencil a week. That’s a lot of long division. The rebellion began. I bought half the required pencils.
Each year there were oddly specific requests, too, such as one red pocket folder with brads or a pack of unlined index cards and alphabetical dividers – and don’t forget the file box. Occasionally, these oddities came home at the end of the year unused. I grilled one hapless teacher until she confessed. Sometimes lessons plans were just that. Plans.
My rebellion broke wide open. I became one of those parents who sent their kids to school with half a pack of mis-matched markers and old pencils with new eraser tops. Michael kept telling me I bought the wrong kind of poster board home from the grocery store for his fifth grade social studies project. The right kind involved a special shopping trip and ten times the money, so I ignored him. He got a B. This year he turned 19 and think he’s finally forgiven me.
Sanity returned – temporarily — in middle school. Those teachers didn’t ask for much more than loose leaf paper and map pencils. Perhaps that’s because so many middle-schoolers can’t remember their locker combination from Friday afternoon to Monday morning.
As our kids reached high school, Sam led us down the primrose path. He clawed his way to high school graduation, so there wasn’t a lot of time for extra-curricular activities. School for him required little more than pens, pencils, folders and loads of loose leaf paper.
But then came Michael and Paige – with band, athletics, theater, student council, French club, color guard, and more. When Sam shared his receipt he paid for tuition and books for his first fall semester at the local community college, we noticed the total. It was less — far less — than the tab for his siblings’ fall semester at Argyle High School.
Paying for high school went just as upside down as everyone’s jumbo mortgage in the housing bubble. When the national spotlight fell on our school’s homecoming dance three years ago, I knew what the problem was. What parents conned into buying $250 mums and $400 gowns wouldn’t holler? Not about dress codes or dancing distances, just holler, loud, in general?
We need a new rubric for school economics.
I think about a Dear Abby column we clipped and put on the refrigerator when Sam was having trouble differentiating world economic systems. It used the analogy of “you and your two cows.” We kept it on the refrigerator until the exam. Every time they reached for milk, they were reminded that capitalism meant you kept your cows, and the sold the milk. Or when they raided for a midnight snack, they understood that facism meant the government took your cows and shot you.
Michael though it was a hoot. Sam, my literal-minded guy, had to keep telling himself it was an analogy.
And I think about my dad and that one summer after he retired from dentistry and helped his friend out by milking cows. His friend paid him, but it was minimum wage. After that, when he bought things, Dad would sometimes take to saying “I’d have to milk cows for four hours to pay for that.”
Now that, Sam understands.
For example, class dues. These are utterly necessary, hence the name “dues.” If you don’t pay them each year, the school does not permit your child’s purchase of $150-per-couple prom tickets, which voids any other of those once-in-a-lifetime, must-have, over-the-top prom purchases. Cost of class dues: three hours of milking cows.
Band instrument rental. If a child plays an odd instrument, such as the oboe, the school provides the instrument. This is good news. A school rental is far less than a rent-to-buy agreement for trumpet or saxophone that the child outgrows as soon as the instrument is paid for. However, oboes are not suitable for marching band, which means the child must join the color guard. This is second only to cheerleading in its specialty equipment needs – such as tunics and tops, pants and shorts, jackets and warm-ups, custom bags, shoes, gloves, decorated flip-flops, make-up, hair gel, and false eyelashes. All these required items ensure that when the flag is tossed up for a double-and-a-half spin, it gets caught, instead of falling on your child’s lip. Cost of band instrument rental, ten hours of milking cows.
Health physical. This is required if your child enrolls in athletics for a physical education credit and joins the cross country team. This is good because the school provides the uniform and you need only need to buy two kinds of shoes, one for training and one for racing. Oh, and lots of socks. The school also provides a low-cost physical before school starts, so all the returning athletes know about it and don’t tell the new guys. You take your child to the regular pediatrician to learn that your insurance covers a well-child check 100 percent, but doesn’t cover sports physicals. Cost of health physical, thirty-six hours of milking cows.
Yep, Dad, I like that rubric.

They shoot coyotes, don’t they?

I’ve been holding my powder on the death of Gerren Isgrigg, the 6-year-old boy with both a developmental disability and medical needs, and who was left to die in a field by Lake Lavon by his grandmother.

I wondered how long it would take before the political shoe would drop.
And with an unimpressive thud, it did:
Let’s broaden our Baby Moses law to include children up to age 10. Parents and caregivers can abandon a child at a fire station or hospital without fear of recrimination.
Really, Texas, really? Is that all you’ve got?
Let’s just keep passing the problems around. Law enforcement is already chasing down Gerren’s mother. Apparently, they want to know whether she unlawfully passed the burden of his care onto her own mother, Gerren’s grandmother. From the news reports, it appears that Gerren’s father walked away from the responsibility three years ago.
This rant is not about blaming parents for failing to step up. I am not the first, last, or only parent who, in her darkest, weakest moments, nearly headed out the door. Many days, I wasn’t certain I was going to make it through the next ten minutes, let alone to the end of the day or week. And my child does not require skilled or semi-skilled medical care. I know families with such burdens. The burden for those families is mammoth.
You cannot fathom the depth of our trenches until you’ve been fox-holed there for five or ten years.
Texas Parent-to-Parent matches experienced — and trained — parents with less experienced parents in similar situations. As a young parent, I got incomparable emotional support from someone who had walked in the same cruel shoes in the same darkness and somehow found her way into the light.
But emotional support is not caring for the caregiver. It’s not respite. It’s not case management, or additional in-home care, or supplemental training.
You want that support in Texas? Good luck.
This is Texas, home of the Corpus Christi fight club, where the governor shoots coyotes.