Terms of Endearment

I first moved to Texas as a college freshman, straight from the Dairy State. There were all kinds of culture shocks for me, including the one where every woman on campus called me “Hon” or “Honey.”

No one ever called me that before. But here I was, trying to learn how to eat jalapenos and chicken fried-mistake and the lady behind the serving tray wants to know “do you want grits with that, Hon?” I heard it most was when the staff member and I were in the middle of something difficult, like dropping a class or cashing a check. It felt very patronizing.

And that is because it probably was.

When you get dropped into another culture, or subculture, it’s easier to pick up on those kinds of things. And that brings me to the word “kiddo.”

Now, I’m not going to blow this out of proportion. One-to-one, it’s a term of endearment. It’s not the r-word, which mercifully, and finally, the Texas Legislature has banished. All our MHMRs must be renamed.

And this isn’t something that requires a People First refresher.

But I’ve heard this sort of thing so often — “It was a tough day for the kiddoes,” or “I’m trying to find out whether it will help my kiddoes,” or “Who’s going to stay with the kiddoes?” — that I’m starting to wonder about the usage.

Unless you’re using it one-on-one as a term of endearment, then just don’t use it.

It’s sounding patronizing.

Getting distracted

I didn’t think it possible we’d get through April, autism awareness month, without at least one discussion of “it.”

Andrew Wakefield and the MMR vaccine and autism.

Oh, I am so weary of “it.” But The New York Times ran a nice long one for us on Easter Sunday. All about the parents who irrationally defend the doctor who can’t even practice medicine anymore. He still believes. So do they.

His one legacy may be his identification of the need to research bowel problems, and to that I say, amen. That needs to happen.

But my goodness people, don’t go experimenting on our children based on some half-baked theory. First, do no harm. Even when we vow to be conservative and gentle, we can find there dozens of ways to get after problems that need to be solved.

I believe the rest of this battle is a distraction for parents who need support in their grief work, and support in dealing with this role of caregiver that can be unbelievably demanding. Don’t stand on a balcony in Austin, Texas, and pretend you are in Tuscany. You’re wasting our time.

Off-topic, but not really

My daughter, our youngest, decided to attend the University of Iowa this fall.

She has known for some time that she wants to major in English, and so had her sights set on the University of Texas.

For a time, I was feeling really smart about that Texas guaranteed tuition contract I bought when she was in kindergarten (oh, yeah, after tuition deregulation six or seven years ago I totally saw THAT train wreck coming.) And she’s a really good student — her GPA is over 100 points. It looked like things were going to line up nicely for her.

But because she’s also in a good school with lots of good students, UT capped her.

The only way to be sure they would let her in is if she were in the top 8 percent. She’s in the top 11 percent. UT says she’s welcome to populate one of the campuses in the outer hinterlands (I won’t let her go to UT-Arlington because they are drilling) and then they will let her come to Austin her sophomore year.

In addition to creating the financial train wreck of tuition deregulation, our legislature in their infinitely stupid policy making, told Texas colleges and universities — the public ones — they had to let in the top ten percent of every high school.

Now, Iowa knows what they’ve got when they’ve hooked a student like Paige. She scored so high on their admissions rubric, they offered her the regents scholarship package.

Got to buy lots more sweaters.

Texas never hesitates to squanders it best resource … its people.

The King’s Speech

I’ve thought a lot about this movie since I first blogged about it after seeing it over the holidays. As a storyteller, I appreciated the filmmaker’s storytelling elegance and prowess.

Now, the film stands to win as many as 12 Oscars, and I am still thinking about the film and its incredible humanity. My favorite scene came early in the movie when the Bertie’s daughters beg him to tell them a story. He delivers a touching tale of self-acceptance, a story within the story.

There is something to learn, as well, in the Lionel Logues of the world. It was a gift that he learned how to help people in a trial-by-fire kind of way. What he had going for him — a quality that sometimes gets drilled out of those with more formal training — is cultivating that sense of equality in a caregiver-client relationship.

In the case of a speech therapist and a stutterer, it seems counter-intuitive to not do that. But when you think about all caregiver-client relationships, that equality applies.

Trained expertise does not subjugate any portion of another’s humanity.

Just a Little Radioactive

In one of the dozens of “grief books” that friends gave me after Mark died, I learned a helpful lesson. When something bad happens to you, people around you may react to you as if you are a little radioactive.

Granted, I probably was. People want to show that they are compassionate, but most aren’t ready for a deep walk in the emotional woods with you on a moment’s notice. It’s a strange place to be, socially. People circle around you to help insulate and protect you, but if you need someone to be with you in a big way, the list of those capable is pretty short.

And even the capable ones have their days that they just can’t.

That’s good to know. I was pretty tender-hearted back then — and still am often — so it helps to know that I scared people even more than I normally do, and to not take it personally.

I ended up spending a year with a grief therapist. I could have joined a group and got the same kind of support from others, but I recognized that my level of introspection (some might call it navel-gazing) would probably scare the people who could see the thestrals, too.

The perspective is helpful as I look back on Sam’s early childhood. People are especially challenged in supporting you because it’s not a true tragedy. As the years go by, I’m finding it easier to lay a lot of those experiences to rest, knowing that some people were trying, but what I might have been seeking was more than they had to give.

Yes, Virginia, sometimes there isn’t a Santa Claus. But, you’ve got a spine, and prayer, so you’ll be fine.

We’re going through another round of that “radioactivity” in our lives. I’m pretty savvy to it — the list of people who can tackle the topic is small, and I have had to re-arrange my life somewhat in acknowledgement of that. I’ve even overwhelmed my family from time to time. Most of the time when friends and acquaintances push for information, I tell them it’s really not suitable for polite conversation.

But I forgot that little social rule today, and shared too much with someone who just seemed endlessly curious and capable of the conversation until I got the look. I knew that look, it was the get-me-out-of-this-conversation-this-lady-is-radioactive look.

The timing makes the poison

In 1976, somebody had a good idea: let’s protect people from toxic compounds. Then, the law designed to do that got pummeled by the asbestos industry. We’ve not had the courage, since, to revisit the issue.

Toxicologists used to say, the dose makes the poison. Now that 5 to 15 percent of children have neurodevelopmental disorders — including autism — they are learning that the timing makes the poison, too.

The EPA is building a roster of about 200 chemicals that pose the greatest risk to our health.

They aren’t getting very far with it.

Why do so many advances we make become the very things that seem to do us in? Why aren’t we smart enough to avoid that?

You always pay

An obscure piece of news — a story about a doctor winning an award — caught my eye today.

It wasn’t the startling rate of autism, which has increased exponentially since my son, Sam, was diagnosed almost 20 years ago. (It’s now 1 in 80).

It wasn’t Dr. Philip Landrigan’s beautiful characterization about the brain. (“The human brain is capable of doing calculus and writing symphonies and enjoying the beauty of the sunset, but the cost of that is exquisite vulnerability,” he said.)

It wasn’t that the writer of the article assumed the villain in this unfolding health crises is one or more environmental triggers, though that could ultimately prove to be true.

It was the estimate of how much the U.S. saves each year in health care costs since we removed lead from gasoline: $200 billion.

China thought they could develop like we did, go-go-go, and clean up later. We got away with the “clean up later” model because people didn’t know.

But we’re still paying for it — in ways we cannot even measure. Millions born with brains that mean they must struggle more than their fair share, for one. Health care costs that, in a generation, went from affordable to not.

We should never put the responsibility on another generation, hoping technology will catch up. You always pay, one way or another.

Still looking

I spent the past day and a half in Austin. Every time I go, I meet the nicest, smartest, most compassionate people.

The kind of people that wouldn’t string out our kids for the sake of politics, the kind of people that wouldn’t balance the budget on the most fragile in our state.

But there is a crack in the universe there somewhere, you know, I know it. It’s the one where all the other people in Austin apparently are, the ones that make some of the stupidest public policies ever.

I haven’t found it yet.

Not an adjective

I love playing with language.

For me, reading and trying new word combinations can be as exciting the unexpected deliciousness of eating watermelons and tomatoes together, or layering old favorites from my closet in a new, flattering combination.

But I couldn’t muster the stuff for a tech writer who described a tablet-only publication — as in a newspaper subscription for your iPad with no external links — as an “autistic app.”

Eeeeeuw.

First and foremost, autistic is misused as an adjective. And any editor who let that slide needs a refresher course, not only in English but also in People First language. You show respect when saying “he has autism” instead of “he’s autistic.” Two steps way back with that.

Here are some reefers to real apps … just in case you were wondering …

http://www.modelmekids.com/iphone-app-autism.html
http://www.autismepicenter.com/autism-blog/blog2.php/2010/10/23/autism-apps-that-will-help-you
http://www.gadgetsdna.com/10-revolutionary-ipad-apps-to-help-autistic-children/5522/

Some of them look marvelous and it makes me wonder how we ever made it, hauling around that little crate of vocabulary cards.