Track by Track documentary

Sam and I took in a collection of short films at the Thin Line Film Festival Sunday night, knowing that one of the short features was about a young man much like him.

Track by Track features the story of Kendall Collins, a young man with autism from a small town in Merced County, California. Kendall is a gifted artist and makes some money selling his drawings, even though he isn’t quite sure about handling money. He wants to go to college, because that’s the next step life says will help him be successful. But he still likes to swing on the swing in the side yard of his family’s home.

Sam said he liked the movie very much. The filmmaker, Anna Moot-Levin, allowed Kendall and his family to be fully human, even in such a short feature. I liked hearing the little chuckles in the audience when Kendall said something so plainly descriptive and honest that we in the audience couldn’t help but see ourselves more fully, too. For example, Kendall tells us he won’t wear a ball cap because it makes him look young. Instead, he wears a fedora because it makes him look more like a businessman.

I get that kind of conversation everyday here at home. It’s such a gift.

“Track by Track” was the first film about autism I’ve seen that really gets what our life is about. Unless enough people voted to make it the best short, it won’t show again in Denton. The next screening is in Missoula, Montana. I’m glad I got to catch that firefly when I had the chance.

Confessions of a second-grader #2

With any luck, Sam will comment about the Nintendo accomplishment. He still remembers it — it was a hard-fought win on Legend of Zelda.

September 14, 1995

I feel great because I made it to level seven on Nintendo.

September 19, 1995

On rainy days, I like to get an umbrella, and I open it and I stay inside with it opened. 

September 20, 1995

My friend and I had a quarrel. We solved our problem by saying I’m sorry. 

Confessions of a second-grader #1

I kept Sam’s journals. I’ll roll out some more highlights over the next few weeks and you’ll see why. Thanks again to all the brave teachers at Argyle Elementary for guiding him.

August 18, 1995

My goal for second grade is to stay in my seat. 

September 7, 1995

My favorite city is Bear Valley because there are pine cones. 

September 12, 1995

I wish my teacher would blow science bubbles all day today. And for the rest of the week. 

 

Country cough syrup

Up north, we just bought cough syrup. It works well enough. Then I came to Texas and my college roommate and BFF introduced me to country cough syrup. It works and, like chicken noodle soup, does a whole lot more for your quality of life when you’re feeling bad.

In case you don’t know the recipe, here it is, and offered up for all the people around here still sick with the flu, or fighting a lingering cough (as in about 1/3 of the newsroom):

Brew one cup of black tea. (I like Earl Grey for this one). Add a squirt of lemon juice, a heaping teaspoon of honey (local is best), and a shot of Wild Turkey, or your favorite bourbon.

Drink slowly so the vapors can do their work, too, and then go to bed.

Sam, age 9, makes pudding

From kindergarten through 8th grade, Sam spent one afternoon a week in the clinic with occupational therapy students at Texas Woman’s University — usually two students would be working with him under the supervision of the professor in a clinical practicum. At the end the of the term, each student would plan a program for Sam and videotape it as their final project.

He pursued a wide range of activities in the clinic that helped him become more coordinated. By the time of this project — Sam is about 9 1/2 years old — he was on his way to following multi-step directions, interacting with people, staying on task with jobs that might otherwise make him uncomfortable.

We took cues at home from lots of these experiences. For example, Sam, Michael and Paige participated in 4H food events. It was no small victory in high school to help him build confidence using both the stove and the oven.

For entertainment value, this 11-plus-minute video is about on par with watching any home movie, but if you are looking for ideas to work with a child with autism, this is good stuff. Enjoy.

Book report, part 2: The Science of Consequences and autism

I hope the first essay about Susan Schneider’s The Science of Consequences — dealing with the ostrich effect — doesn’t turn out to be a spoiler for this one. I wasn’t reading the book for my day job, yet there were many cross-overs.

That’s always nice.

At the end of the book, Schneider shows how we might solve problems on a grand scale with consequences (global warming, overcoming prejudice) and, as I was reading that, it occurred to me that many parents of kids with autism — especially the young parents — don’t realize the power of consequences.

Ivar Lovaas had put together a program of consequences (they called it Early Intensive Behavioral Treatment) that raised the IQ of kids with autism, on average, by 20 points back in the 1980s, not long before Sam was first diagnosed. We helped bring his program to Sacramento, even though we didn’t understand it very well and Sam would never directly benefit from it.

Back then, we couldn’t see how learning to imitate, or learning to pick up a red block, or learning to talk in increasingly longer and more complex ways was going to help Sam in a substantive way. He had autism. We thought that this kind of work wasn’t a cure, it was a way to adapt. Why would any parent think that applied behavioral techniques could make substantive changes in the brain of their child with autism?

But, as I have seen and learned, they can.

Schneider doesn’t set out to show us that in the book. In fact, she doesn’t tackle autism until the final chapters and its quite a brief passage. But, by then, I understood what she was laying out — how consequences have shaped the world.

The book is a review of the scientific literature for the lay reader. Schneider helps us understand the concepts of reinforcers and the variety of behaviors they can shape, including complicated ones. She helps us understand how negative consequences aren’t always, and how positive consequences can be negative.

She shows us that genetics are affected by consequences, and almost in real time, not just through evolution. And while scientists have long known that an enriched, language-filled upbringing is best for young children, they have also determined that enrichment later in life can make up for a young life that missed out. What parent of a kid with autism wouldn’t find hope in that science?

I actually got more out of the chapter on “Thinking and Communicating” and its implications for autism, than I did on the autism section. To wit:

“Simply listening to language is clearly not enough to pick it up. Interactions — and the consequences that necessarily go with them — are critical. For example, a hearing child raised by deaf parents spent most of his time at home. The TV was kept on for him on the theory that this exposure to spoken language would suffice for his language development. By age three, he had readily learned the sign language that his parents used but could not understand or speak English. There had been no consequences for learning English, but there had been plenty for learning sign language.” (p. 151)

So, turn off the TV and create a rich environment for your child.

There are social elements in all language, and Schneider helps us see how that plays out. Requests, for example, benefit the speaker, while descriptors benefit the listener.

I know. Duh.

Bear with me.

When you are putting together a program to help a child with autism learn language, you have to be able to harness scores of facts like that, because as Schneider writes, “understanding what’s happening and why, and taking advantage of all the positive consequences available” (p. 241) is what you need to make that change. As she cautions us, “the basics seem like simple common sense but are not as easy to do as they sound.”

Just ask any parent of a kid with autism.