Social stories and the Argyle trains

Paige and I were on the hunt for some drawings she did as a child and stumbled upon loads of other fun stuff. I saved a lot of the kids’ work from elementary school. I tried to limit it to their journals and things they created in art class and it still ended up filling several large boxes that either sit on the top shelf of my closet or slide under the bed.

I also saved some of the things that meant a lot to Sam in those years — for example, his social stories.

We were fortunate that social stories came out when Sam was in primary school. We bought a whole binder full of them and wrote some of our own. We made them into little books and covered them with construction paper. Some of them have stickers on them. It meant something back then, but I don’t remember what. I think it’s a hoot, though, that many of them are a cartoon of a head of broccoli running with a fork and knife  from Albertsons, since that’s where he works now.

When family or friends would ask what a social story did, I told them that Sam had trouble picking up social cues. But if we detailed them in a story, he knew to watch for them and then he would know what to do next.

From a stack of about 20 that I’d saved, Sam pulled out this one about the trains first. Like many small Texas towns, Argyle grew up around what is now the BNSF line. When we first moved here from California, we moved to a small house by the train tracks. Sam was five then. And while I don’t remember this very well, he must have been easily distracted by the trains and it was becoming a problem from him attending to important tasks.

Sam said he remembered the stories. And, oh, the smile on his face went from ear to ear as he read it aloud.

“About the Trains” 

We live at the chicken house. Trains go by our house all day and all night. 

I like to watch the trains. First, I can hear the train rumbling in the distance. As the train nears, I can hear its whistle blow. 

Then the red warning lights come on. The engines go by. I can count the engines. The cars come next. I like to see the different kinds of cars. 

When the train is through the crossing, the red lights go off and the crossing arms go up. 

Sometimes I’m too busy to watch the train. I have other things to do. That’s ok. I can always watch the next train go by. 

 

 

 

 

Autism’s top ten research advances

I’m grateful that within the first year of Sam’s diagnosis a friend of my parents copied journal articles for me and showed me how to read them. Kitty told me it was important to keep up — there was a lot of research being done and we needed to transfer that knowledge in how we worked with Sam.

We learned all kinds of interesting techniques (social stories and video modeling were among the best). We also learned to watch for signs of “readiness.” Kitty showed us that speech has a pattern of development and that Sam’s speech could well be following the pattern, just at a more deliberate, rather than dizzying, pace. When Sam looked ready to learn something, we gave him a leg up and tried to stretch that bit of readiness into other skills.

Autism Speaks helps me continue to stay abreast of the latest in research. (You can subscribe to their science digest here.) There is still a lot of work to be done for the young, but Autism Speaks and others are looking at the problems of under- and unemployment for young adults, too. That topic made their top 10 list this year, and that is good news. We have a choice. If we provide people with autism the right support, they can work and contribute. Or we can do nothing and pay a much, much higher price.

Christmas Eve

No other holiday has a night before the way Christmas does. There’s this quiet that comes on Christmas Eve, if you let it. The more Christmases I celebrate, the more I like Christmas Eve.

Glass bulb, 2012

Glass bulb, 2012

I try to make a lot of the presents we give instead of buy them. It forces me to plan ahead and, as a result, elevates the entire experience a little.

The kids and I have let some of our traditions evolve, too, so no one goes crazy trying to keep something going. When the kids were little, we made a gingerbread house and took it to preschool for the Christmas party. All the kids had fun picking it apart to take a piece home. When they got older, I made a one-dimensional piece for the mantel one year. Then I just made dough so the kids could make cookies. This year, Paige asked when she got home from the U of Iowa if there was any gingerbread dough in the freezer. There wasn’t, and we didn’t make any.

But on a whim, we stopped at the Russell Stover factory store in Terrell on the way to celebrate the season with Aunt Regina in East Texas. We bought a cardboard gingerbread house filled with peanut brittle.

New to the tree in 2012

New to the tree in 2012

We spent some time in downtown Kilgore, ate lunch at Nanny Goat’s Cafe, came back to Regina’s house and sang Christmas carols around the piano in the parlor. We played dominoes, too. We did cast a glance toward SantaLand on the way home (2.5 million lights strung along a driving trail in the East Texas woods), but saw the rush-hour-sized car line and took a pass. It had been a nice day. We didn’t need to spoil it.

Tonight, we are waiting for Sam to come home from work. He will help close the store. I had to work today, too. All that makes it hard to switch gears and make it to a candlelight service, but it doesn’t matter. We know how to do this. The serenity is settling in.

Happy Christmas everyone.

Great Hall, Wolfe House 2012

Great Hall, Wolfe House 2012