Fifty shades of attention
Sometimes the best conversations you have with your kids are in the car on the way somewhere, or while you’re working on something together. I don’t understand why it worked, but we’d get revelations from Michael as we did fence repairs for the goats, for example, or from Paige after we’d get going on sewing project together.
Only in the past few weeks did I come to realize that wasn’t really the case for Sam.
Of course, when he was little, and we discovered that giving him our full attention managed to coax more language and social development out of him, we gave it our all. Mark even took a square tabletop off its pedestal leg and put foot-high 2x2s under all four corners for a play table. We spent hours sitting at that play table with him. Sometimes, it became just like a family dinner table in Japan. We cleared off the toys and sandpaper letter cards and other learning materials and ate our meal there (usually in front of a baseball game, we weren’t saints.)
As Sam grew and his language and schooling caught up, there was much less direct time like that together. We chatted at the dinner table, in the car, just like we did with his brother and sister.
In recent years, though, we noticed that Sam often had false starts to his sentences. Paige mentioned her concerns that she might have to wait for him to start and re-start a sentence as much as four or five times until he could finish it.
I wondered if I needed to find a speech therapist to help him. Sam and I talked about it briefly, and he was amenable. He had speech therapy throughout elementary, middle and high school. We didn’t seek it after that. But I told myself, add it to the list, but not at the top. We’ve got bigger fish to fry (and that’s not a metaphor: we’ve been working on cooking and kitchen management this year.)
While reading a new book on mindfulness, Thich Nhat Hanh’s Peace is Every Step, I had a quiet revelation. (Reading it as part of my work with Shahla Ala’i-Rosales and our new book on mindful parenting for those who have children with autism) What if I gave Sam my full attention when he started a sentence with me? Would that diminish the false starts?
That meant if he started talking to me while I was filling the dishwasher, for example, I was going to have to stop in the middle of my work, not just keep talking and working at the same time. I’ve been in single mom mode for nearly six years now. I recognized this would be training for me, not for him.
I got plenty of reinforcement for the change right away. The false starts diminished almost immediately. I told Michael about it and he was excited for us. He may even take data on my attention and Sam’s sentence starts next time he’s home, if it isn’t completely gone by then.
Shahla told me it makes sense. Many of us have learned that we can carry on a conversation with another person while they are doing something else. But Sam and others with autism may be less sure of the social cues. They may question whether they are communicating. They may think they are making a mistake, Shahla says.
Oh, no. That mistake was mine.
DIY recipes: Salami
When we pulled this recipe from Aunt Regina’s files, everyone got excited because this was a really popular recipe with the family. But, as Aunt Regina says, “You really get into a job when you make that.”
Williams-Sonoma carries pink curing salt, but I’m not sure it’s any different than the Morton Tender-Quick her recipe calls for. All pink cures have the same concentration of sodium nitrite, 6.25 percent, the meat guys say.
Random Thoughts from the Tour Des Fleurs 20K
A boy pulling his fishing net from White Rock Lake is such a joyful sight it will make you crash into your running buddy. A woman running with her dogs behind you is less scary than a pack of schoolteachers running behind you.
You have to add some outs-and-backs to a run around the lake to get the miles in. If you don’t get the out-and-backs lurking around the lovely Lakewood neighborhood, just drive the neighborhood when the race is over instead.
You aren’t wasting your time wishing for good weather in Texas if she dishes up sunny, dry and 65 degrees. Weed-whacking the lake’s edge waits for no one.
Two years of training for long races makes for a deeper level of mental toughness, but you gotta stop and look at the pumpkin houses anyways.
Overheard in the Wolfe House #246
Peggy: Well, I’m not sure about these new glasses.
Sam: Yeah, you look pretty funny in them.
Overheard in the Wolfe House #245
Peggy: Should we get Colorado flood relief t-shirts?
Sam: Oh, yes.
DIY recipes for the pantry: Barbecue sauce
Oh, Aunt Regina. You had me at Southern Comfort.
Barbecue Sauce
1/2 cup peanut oil
3 onions, chopped
1 cup bell pepper, chopped
1 cup celery, choppedStir.
1 cup fresh parsley, chopped
Stir.
2 tablespoons garlic
Stir.
3 cups steak sauce
3 cups ketchupStir.
1 cup Southern Comfort
Cook two to three hours.
Remembering a visit to the E.R.
Researchers have come out with a protocol for emergency room personnel who find themselves caring for a person with autism. I’m glad to see this.
In January 2009, I took Sam to the emergency room in the middle of the night.
He got a bladder infection. He came home from the first day of competition at Chisholm Challenge and was passing blood, which alarmed him. I told him we’d skip the second day of competition and see a doctor in first thing in the morning. But, he woke me up at 2 a.m., shaking uncontrollably and a little panicked.
Even though he’d just turned 21, the pediatrician was still his primary care doctor. So I phoned the nurse on call. Because he was exhibiting signs of shock, she told me to take him in. By the time we got there, he had stopped shuddering, but his urine sample was brown.
We’d gone to Baylor-Grapevine, which was a fairly new hospital at the time. He was already familiar with it because an occupational therapist working out of the rehab center there helped teach him to drive. (Big shout out to Cathy.)
I remained concerned. Would it be filled with people? Would the sounds of arriving ambulances distress him? I was worried most about the staff. Would they be brusk and stand-offish? Would he be hustled around? I didn’t have time to prep them the way I had prepped the many other doctors, dentists and health care givers in his life.
With the first interaction, I saw the lightbulb go off in the ER nurse’s head. She immediately adapted. And everyone who followed after her knew to take their time, be calm and explain each step.
We were lucky, too, that it was a quiet night. The visit wasn’t much different from one at a doctor’s office, except for reams more paperwork and the occasional paramedic tromping down the hallway.
Here’s what the research recommends and what I noticed the folks at Baylor-Grapevine already knew to do:
· Usher patients to a quiet, more dimly-lit room with less equipment
· Avoid multistep questions and stick to questions that require only a “yes” or “no” answer
· Communicate with the care giver or family member, if one accompanies the patient, to get an effective medical history
· Keep voice calm and minimize words and touch
· Let patients see and touch the instruments and materials that will be placed on their bodies
· Use a warm blanket to calm a patient down and administer mild doses of medication rather than physical restraints to quiet a patient
Parental Advisory. Don’t look if you have arachnophobia
DIY recipes for the pantry: sweetened condensed milk
Continuing in the series of DIY recipes we found in Aunt Regina’s collection. Sweetened condensed milk, for those times you want to keep your pledge to not cook from a can.
Overheard in the Wolfe House #244
Peggy (sneezing): Achoo! Achoo!
Sam: Bless you. Bless you. (pauses) There. I’m covered.









