love
My Dad is Socrates
After a long discussion about this summer’s horrendous heat wave …
Peggy: I confess. In years’ past, I would be grateful if we had only a few days over 100 degrees.
Dad: Is that really a good way to live?
Peggy: Ummmm, no.
Anesthesia and the Incredible Likeness of Your Being
I just brought Paige home from the dentist where she had all four of her wisdom teeth extracted. I’ve been through this enough — with Mark and the boys and myself — to know what to expect.
Paige, always thinking, rarely speaking, has yet to say a word, but we’re communicating. That includes her throwing a hand signal to make sure I didn’t forget about the construction detour on the way home. (I almost did.)
Michael, always questioning, came out of anesthesia with a 10-second loop of memory. He looked at me and asked, “Is it over? That wasn’t too bad. How do I look?” Before I could answer the second question, he came again. “Is it over? That wasn’t too bad. How do I look?” I squeezed his arm and tried to get to that second question again when he looked up at me the same way for the third time. “Is it over? That wasn’t too bad. How do I look?”
The nurse said, “That’s pretty common. He’ll get his memory back.”
Mark had a tougher time of it. Like most of his life, everything came with complications. When I’ve been under, all I do is sleep and puke. I have to purge before I can get on with my life. But when I do, it’s a brand new day.
Sam becomes his essential self, too. When he wakes up from anesthesia, his big brown eyes turn into holes of the universe, just like when he was a baby, and if you let yourself fall in, it’s love and terror all in one.
Love Letter to JK Rowling
My daughter and I have tickets to opening night of the final installment of Harry Potter Thursday. The kids have gone on opening night before; this will be a first for me. We’ll see part one and part two back to back. It seemed right to do it. Paige, my youngest, heads off to college this fall.
I don’t know how my kids would have grown up without being able to do it alongside Harry Potter. Ours is a happy house, overall, one that often looks like the Weasley’s burrow, although my clock doesn’t keep very good track of the kids and I must wash dishes myself.
But their world has become a dark and scary place more than once, and there were times it seemed only the wisdom in those pages got them through.
When love didn’t go as planned, there was Harry and Ginny, and Ron and Hermoine, to remind them that respect and friendship comes first.
After their father died suddenly — and they felt all alone knowing that no one else in their world knew what they knew — along came Luna, who reassured them that she sees the thestrals, too.
And when the mother-of-all-battles came home to burn the burrow and destroy the school, they recognized how to sort the world into the truly courageous and those who can only feign bravery.
I doubt, actually, I could have communicated to Sam what is needed to get through the next few years without those final chapters.
Thank you, J.K. Rowling, for being there for my kids when all I had left to offer was the wisdom of the best coming-of-age story ever told.
How Paige Sees Home
JoC’s Strawberry Punch, freely interpreted
For Sam’s graduation party, I put out a devil’s food cake (from Rosso and Lukins’ New Basics Cookbook), chili-lime peanuts (from epicurious), butter mints (from Albertsons) and a double-batch of strawberry punch, based on the recipe from Joy of Cooking.
A few people asked for the recipe. The original is good just the way it is and I’ve made it that way many times, but Sam doesn’t like carbonated beverages, so I had to fake it a little bit.
The Original
Boil for 5 minutes:
4 cups water
4 cups sugar
Cool the syrup. Combine:
2 quarts hulled strawberries
1 cup slice canned or fresh pineapple
1 cup mixed fruit juice — pineapple, apricot, raspberry, etc.
Juice of 5 large oranges
Juice of 5 large lemons
(3 sliced bananas)
Add the syrup, or as much of it as is palatable. Chill these ingredients. Immediately before serving, add:
2 quarts carbonated water
3 cups or more of crushed ice.
The basic mix is concentrated, to offset the dilution that happens with the icing. Water can be added, as desired.
JoC Strawberry Punch, Sam Style
Boil for 5 minutes
4 cups water
4 cups sugar
As the syrup is cooling, hull and slice the strawberries into the syrup (helps the infusion)
When ready to mix, I added one bottle of TexSun Orange-Pineapple Juice (a favorite from his childhood) and 1 1/2 cups of lemon juice, and a small can of pineapple slices, drained.
Chill.
To serve, I added three trays of ice cubes.
Ouch
More than once, I’ve heard that there are too many memoirs written by parents, or siblings, or teachers of those with autism.
Wayne Gilpin told me and Dan Burns (author, Saving Ben, A Father’s Story of Autism, another in the Mayborn series that published See Sam Run) that he thought he had something when Temple Grandin’s mother wrote her memoir, but it didn’t sell like his other books.
Gilpin has a terrific collection of practical books, and frankly, when I had only $20 to spend, I chose the toilet-training book or the educational manual over a parent memoir, too.
Now New York Times staff editor, Neil Genzlinger, has weighed in on the topic, wailing that there are too many memoirs in our current age of over-sharing.
He makes a special notice for the autism memoir — way too many he said.
Ouch.
His tipping point is “Twin,” by Allen Shawn, who reflects on his family’s choice to institutionalize his twin sister nearly 60 years ago. Genzlinger shreds the book’s premise. Not having read the book, it’s hard to share in his criticism; however, his characterization — that the author was tone-deaf in explaining the family’s choice — doesn’t inspire me to even check it out at the library.
I learned plenty from Temple’s memoirs, and the writings of other parents. Sadly, many of those parental writings dedicated too much ink to curative measures, rather than what we’re all looking for.
I like the places in a memoir where real life slams into all the lessons we’re taught on how to live life.
It seems Genzlinger does, too, saying that those families that had the fortitude and resourcefulness to incorporate the child into their lives — and not pay someone else to take care of it — deserve to add to the heap.
Ok, well, not so much ouch anymore.
Conscious parenting
When the boys were still babies, Mark and I watched other parents with their trials and tribulations.
After watching enough toddlers and preschoolers run to their mother’s arms when they were hurt — sometimes running right past father on the way — Mark decided it was important to him that our children be comforted as readily by him as by me.
He felt that he was at a disadvantage because I was the one with the breasts. Frankly, though, it wasn’t hard to to convince the boys that daddy’s hugs and kisses made the boo-boos go away, too. If something happened when Mark was around, he swept in and gave the lovin’ required. Sometimes I’d bring the band-aid and give it to Mark to apply.
Age plays with the memory, to be sure, but I cannot remember ever seeing any of our children, hurt and crying, and in Mark’s arms but reaching for me, instead.
I’m not exactly sure what it got us, but now that Mark is gone, I’m grateful for it.
Conscious parenting was all that was required.
Angels in Switzerland
I’m so grateful for the angels God puts on Earth. I never know when I’ll meet one, or get to spend time with a whole flock of them, like today.
(We’re setting up Sam’s internship … last step before graduation.)
I will share more details in the weeks to come, but all you parents of kids with autism, remember this: accept the angels for who they are and what they do. Let them be the angels God sent them to be. Your life will be better, richer, lovelier, happier …
Those things you worry about? Don’t try to bend the angels to your will. I practiced that lesson today. I’m trusting that things will work out. Because they always do.
Really.
They do.
Overheard in the Wolfe House #60
After helping Sam draw a hot bath to ease the discomfort of a sinus infection …
Sam: (blowing bubbles in the bathtub)
Overheard in the Wolfe House #55
[after sustaining her end of at least 20 minutes of rapid-fire commentary, pressing questions and interrupted conversations that would wear down even the most hardened city news editor]
Peggy (to Paige): Now that you guys are all back home, I can stop trying to have conversations with the dog.

