self-advocacy
Overheard in the Wolfe House #272
Sam (frequent client of a variety of community services, as he opens an envelope): I’m tired of surveys now.
Bonus Overheards: Stuff my Family Says
Sister 2 (reading road sign on the Overseas Highway)
Sister 4: You feel sticky?
Sister 2: No. Fiesta Key.
Sister 3: We get name tags?
Sister 1: No, a hang tag.
Sister 4: My colleague’s wife is a pulmonologist.
Nephew 2: Is that some kind of religion?
See Sam Drive: Lost in mid-cities
If I ever doubted that no good deed goes unpunished, the lesson was reinforced today.
Michael had a job interview and asked to borrow the truck, since the air conditioning is out in his car.
(This is February, you say. This is Texas, I tell you.)
So out of his routine was he, that when he returned to the truck after the interview, he realized he locked the key inside. He called to ask whether there was a hide-a-key.
(No, son, a hide-a-key is something parents make their kids do with their own car.)
He didn’t want to pay for a locksmith if Sam could come with a spare. There was time. Sam loaded directions in the GPS on his phone and headed out.
Sam is not a fan of I-35. E or W. He took State Highway 114 and headed south on Precinct Line Road to where Michael was, in North Richland Hills. That was probably a mistake. Maybe U.S. Highway 377 would have been better. He got lost somewhere in Keller — so lost that he pulled over and called police to get help. They came and gave him directions.
Sam made it to the parking lot where Michael was waiting and the two of them were supposed to follow each other to I-820, where they would part ways at I-35W.
I thought all was well and then Michael called me again.
“I lost him,” he said.
Every parent of a child with autism knows this terror. And now his brother was learning it, too. Michael recounted as much of the situation as he could, starting with the moment he realized Sam was heading down State Highway 183 the wrong way, and I was at a loss of what to suggest next.
Sam had turned his phone off to save battery life. That worried us both. Not only was he not communicating with us, we knew “Siri” wasn’t giving him directions home.
“Call the police. Make a report,” I told him. “We can’t do this. We need the village.”
A co-worker (one of several that talked me off the ledge today) offered to take me home and Shahla provided a bit of support via text. Meanwhile, Michael was making a report with the police. I so hoped that Sam would be parked in the driveway when I got home, but he wasn’t.
I put an alert on Facebook and started to regroup. I would take Michael’s car and meet him and the police in North Richland Hills where they were making a missing persons report. (Because Sam has autism, it would have gone out immediately.)
And then Sam came down the driveway. I called Michael. The police shredded the missing persons report Michael had just signed.
It took awhile for the emotions to settle and the conversation to begin. Sam knew he had separated from Michael and had been going the wrong way down the highway. But he remembered the directions Michael gave and when he was sure things weren’t looking right, he turned around and went the other way. He stopped at a medical center to get directions, too, and then he headed home.
(So, Tim Ruggiero, not only pizza places, but also medical centers are good places to get directions, we learned today.)
We gave ourselves a list of things to do, like Michael joining AAA, and Sam putting GPS in his car with a “home” button, and me putting a hide-a-key on the truck, so that all our good deeds trying to help each other out don’t get so punishing.
And, a big shout-out to all of the mid-cities’ finest. You got to know autism today and you did well.
Overheard in the Wolfe House #256
Sam (as Pandora ventures to other artists on an Enya holiday station): You can’t listen to that when you’re depressed. It makes it worse.
Letter to Santa
In 1993, Argyle still had a free weekly community paper, The Argyle Sun. Each Christmas they ran letters to Santa from the kids. Some children conveniently numbered each item on their lists, but a boy named Jimmy didn’t. The Sun still printed the entire 30-item list, in all caps, with the plurals attached by apostrophes.
Sam was only 6 years old when he “mailed” this letter at the Argyle Post Office and it later appeared in the Sun:
Dear Santa
My nam is SamW. I would likem more
Thank You
How to be spontaneous
Sam got an email Friday giving him a day’s notice for a chance to ride on a float Born2Be would have in the North Texas Fair and Rodeo parade Saturday morning. He forwarded the email to me. I replied that I already had promised to run trail with Susan Saturday morning, but this looked like something fun he could do on his own.
When I got home from work that evening, he said he just didn’t think that a day’s notice was enough notice for him. Did he have to go to work Saturday? Did he have other plans? He said no. But, from time to time, through the evening, he would talk about the parade. I knew he was thinking about it.
Finally, I reminded him that in the movie, Mama Mia, the character, Harry, had a hard time being spontaneous, but he saw everyone else being spontaneous, so he wanted to try. Maybe you can try to be spontaneous like Harry, I told him.
Sam decided to call someone at B2B for more information, and went to bed early with a tentative plan of how he would fit the parade into his day. Sam’s right, a person does have to lay some groundwork to be spontaneous.
Saturday morning we all were up early, and he was ready to head out the door to get there in time to meet everyone else. He was home by lunch and said he had a great time.
“I’m spontaneous,” he said.
Overheard in the Wolfe House #238
Sam (slapping the wall in the other room): Goodbye, mosquito!
Smart as a 5th grader #8
5-21-99
My plans about summer are having free time and playing games. I like playing games better than free time. On the last day of school I don’t get homework because on the day before the last day of school, I take my school supplies home! Wouldn’t that be something!
5-26-99
The best thing in 5th grade is that I work faster and get it done on time. Also, I was on the AB honor roll all year and I participated at Camp Summit. I also got a Circle of Friends award and I had a Circle of Friends party yesterday.
(Scroll down to the bottom of this page to learn more about Circle of Friends.)
Overheard in the Wolfe House #227
Peggy (watching TV): Oh. There’s Hawaii. Still wanna live there.
Sam (in a stage whisper): There she goes again.
Smart as a 5th grader #5
1-15-99
At Recess, I played Duck, Duck, Goose. It’s when people sit in a circle and one person walks around and when (s)he says goose, then the goose tries to get the duck, but if (s)he gets tagged, (s)he’s in the mushpot.
1-19-99
This 3-day weekend I had lots of fun. On Saturday I went places, but not very many. I knew I went to my mom’s work, but I went to DATCU, and other places, too. At DATCU, it had too many people at the drive-thru. On Sunday, I rested. Yesterday, I went to Eureka Park and went shopping.
1-25-99
This weekend, I had a great time. My Grandpa rested. He rested because he had a disease. It probably was a cold. On Saturday, my Grandma worked all day in my upstairs. And on Sunday, she rested.
2-19-99
I want my report card at a one hundred. One hundred is perfect and it’s an A+. You get an A at usual. Sometimes you can get an A-.
Smart as a 5th grader #1
Sam’s journal from 5th grade doesn’t have the charm and pithiness of his earlier journals, but re-reading his entries, it’s clear that he was ready for middle school. The teachers worked hard to plan his transition, and Mark and I really sweated it, but looking back — you’ll see, too — we didn’t need to worry.
Aug. 14, 1998
My goal is the A-B honor roll all year. The thing I know how is to work hard.
8-19-98
We did our Diamante today. This tells all about me, as a person.
8-24-98
This weekend, I was working on my house. It was upstairs. I’m building a bedroom and a bathroom upstairs. It will be the guest bedroom.
9-4-98
The weather outside at recess is hot. I played with Carly and Maria. We played tag. And I got so hot that I had to go inside and watch a movie. The name of the movie was The Fox and The Hound. I only had to watch a little bit of it because Mrs. Boren came by and she needed me.


