Merry PianoChristmas


Almost two years ago, I sent my little upright grand for an extreme makeover, Philip Williams-style. Today, I received an e-mail that my old friend is ready to come home.

Let the carols begin.

Not an adjective

I love playing with language.

For me, reading and trying new word combinations can be as exciting the unexpected deliciousness of eating watermelons and tomatoes together, or layering old favorites from my closet in a new, flattering combination.

But I couldn’t muster the stuff for a tech writer who described a tablet-only publication — as in a newspaper subscription for your iPad with no external links — as an “autistic app.”

Eeeeeuw.

First and foremost, autistic is misused as an adjective. And any editor who let that slide needs a refresher course, not only in English but also in People First language. You show respect when saying “he has autism” instead of “he’s autistic.” Two steps way back with that.

Here are some reefers to real apps … just in case you were wondering …

http://www.modelmekids.com/iphone-app-autism.html
http://www.autismepicenter.com/autism-blog/blog2.php/2010/10/23/autism-apps-that-will-help-you
http://www.gadgetsdna.com/10-revolutionary-ipad-apps-to-help-autistic-children/5522/

Some of them look marvelous and it makes me wonder how we ever made it, hauling around that little crate of vocabulary cards.

Harry Potter hits the core

This weekend the kids and I went to see the penultimate movie in the Harry Potter saga.

We are all big fans of the books. When Michael was young, he wanted to dress up like Harry Potter for Halloween — and some other days, too — long before the first movie ever came out. I went straight to our local costume shop, Rose’s Costume, where owner Judy Smith and her astute crew had already assembled Harry Potter costume kits from old graduation robes, round-framed glasses and brooms to go.

So, Michael, of course, had already seen Harry Potter and the Deathly Hallows Part 1 twice, including a midnight opener, by the time all four of us were able to take it in over the holiday.

Sam had warned me that he thought he might not be able to sit through the most challenging scenes. This was a first. I didn’t understand it, until the movie was underway. Even I had to close my eyes during some of those torture and fight scenes. I felt badly that we didn’t sit somewhere to make it easier for him to escape, or to have Michael help prepare him.

Sam didn’t feel like he could stay put and just look down. I understand that — the movie theater experience is about going all in with the story. Still, he said he was ok, and he stuck with it the entire film, just in and out for two hours. He said he ought to be able to tolerate it once we have it at home on DVD.

What is it about the big screen that just pushes the story’s emotional core right to your own?

Oh, and by the way, if you saw it at Northpark, along with those balony anti-vaccination ads that I’ve heard were running then, please do all of us in the autism world a favor and complain. What is with these anti-vaccination people?

Overheard in the Wolfe House #43

(exhausted on Sunday morning, after a marathon weekend hanging Christmas lights)

Sam: Mom, I still can’t find those white LEDs I bought. They’re not in the truck.
Peggy: (long, rambling mumble about receipts and empty boxes and cleaning up the staging area on the back porch). Wait, Sam, we wrapped them around the metal wreath frame.
Sam: Ok, Mom you just knocked me totally back into my senses.

Royalty check

Before anyone thinks you automatically get rich writing books, let’s just say my latest royalty check for “See Sam Run” would not quite cover the cost to fill the tank next time I’m at the gas station.

But I was thrilled to see it on the plus side, rather than the other way around (deficit for returns). The book is still selling, which says something.

Plus, I sleep well at night knowing this kind of royalty isn’t my take in a zero-sum game.

Road trip

I’ve been experimenting with leaving Sam on his own for a couple of days, just to see how he holds up. Dishes get washed, and animals get fed, house stays clean. He even went to the post office and picked up the mail and collected all the newspapers. This is good.

We shop before I go so that he can cook for himself, but he doesn’t. This time, I made a pile of sausage kolaches before I left. That was supposed to be breakfast. He just told me that was pretty much what he ate while we were gone — he made neither the spaghetti nor the pizza — both of which he’s made many times on his own for family meals.

When your toddler has autism, sometimes it’s hard to discern which is which. For example, was that temper tantrum the sign of something that needs to be addressed, or was it just your run-of-the-mill hissy fit?

I feel like I’m right back there again. Do I worry that this is a sign of self-help skills that need shoring up, or is he just being a bachelor?

Emotional IQ

Sam and I had the most amazing exchange this morning, one that belongs in some kind of magazine about how mature people should deal with powerful emotions.

First, you’ve got to set a stage for two people completely, utterly and totally misunderstanding each other. We’d both just gotten up — and neither of us are morning people. Plus, I had had only a sip or two of the morning joe, so that’s two strikes against me.

Sam was opening a vitamin jar to get a tablet out and suddenly it just flew from his hand and rolled on the floor. I didn’t see any of this. I just heard him yell “OH!” so loud adrenaline rushed to my nerve endings, so full and fast that it hurt my fingertips.

I thought my reaction was amazingly calm, considering. I turned around, puzzled that nothing seemed to be wrong, and said, “Don’t yell so loud in the house.”

That upset Sam terribly. He left the room.

A few minutes later, he told me that my comment made him feel like a little kid again and brought back bad childhood memories. That brought tears to my eyes. I tried to apologize for the comment, but Sam said we shouldn’t talk about it anymore, since it was about to make me cry.

I told him no, please, I welcomed the chance to say I’m sorry not only for hurting his feelings today, but also for any bad childhood memories and we could talk a little more if he wanted.

Sam said he remembered misbehaving, and it was in the past and it could stay in the past. I told him I thought that was very mature.

Then I said, you know, I didn’t know why you yelled so loud. I thought I needed to call 911 or something. He explained what happened, I told him I understood now why he yelled, and then he said he understood why I felt like I needed to say something about the yelling.

What Sam brought to the conversation that was so amazing was believing me when I said I loved him and never wanted to hurt him. That was part of my apology. I told him that it’s important to me to stick up for myself, and I’ve noticed that when someone sticks up for themselves, it can be hard to do without hurting the other person sometimes.

The whole conversation took all of 10 minutes and brought me such a sense of wonderment. I’m still trying to figure out where this supposed lack of social understanding comes from in people with autism. Sam is so clear-eyed and clear-headed. His father and I could not have had such a conversation early in our marriage. Even later in our marriage, it would take two hours to wade through all the emotional thicket to get to the same place.

I think it’s the opposite. I think the rest of us lack emotional intelligence. We play stupid mental games with each other, and we don’t trust each other.

When Sam doesn’t trust someone, he just doesn’t deal with them at all. How smart is that?

Any girl would be lucky to have him.