Overheard in the Wolfe House #221
Sam, age 9, makes pudding
From kindergarten through 8th grade, Sam spent one afternoon a week in the clinic with occupational therapy students at Texas Woman’s University — usually two students would be working with him under the supervision of the professor in a clinical practicum. At the end the of the term, each student would plan a program for Sam and videotape it as their final project.
He pursued a wide range of activities in the clinic that helped him become more coordinated. By the time of this project — Sam is about 9 1/2 years old — he was on his way to following multi-step directions, interacting with people, staying on task with jobs that might otherwise make him uncomfortable.
We took cues at home from lots of these experiences. For example, Sam, Michael and Paige participated in 4H food events. It was no small victory in high school to help him build confidence using both the stove and the oven.
For entertainment value, this 11-plus-minute video is about on par with watching any home movie, but if you are looking for ideas to work with a child with autism, this is good stuff. Enjoy.
Book report, part 2: The Science of Consequences and autism
I hope the first essay about Susan Schneider’s The Science of Consequences — dealing with the ostrich effect — doesn’t turn out to be a spoiler for this one. I wasn’t reading the book for my day job, yet there were many cross-overs.
That’s always nice.
At the end of the book, Schneider shows how we might solve problems on a grand scale with consequences (global warming, overcoming prejudice) and, as I was reading that, it occurred to me that many parents of kids with autism — especially the young parents — don’t realize the power of consequences.
Ivar Lovaas had put together a program of consequences (they called it Early Intensive Behavioral Treatment) that raised the IQ of kids with autism, on average, by 20 points back in the 1980s, not long before Sam was first diagnosed. We helped bring his program to Sacramento, even though we didn’t understand it very well and Sam would never directly benefit from it.
Back then, we couldn’t see how learning to imitate, or learning to pick up a red block, or learning to talk in increasingly longer and more complex ways was going to help Sam in a substantive way. He had autism. We thought that this kind of work wasn’t a cure, it was a way to adapt. Why would any parent think that applied behavioral techniques could make substantive changes in the brain of their child with autism?
But, as I have seen and learned, they can.
Schneider doesn’t set out to show us that in the book. In fact, she doesn’t tackle autism until the final chapters and its quite a brief passage. But, by then, I understood what she was laying out — how consequences have shaped the world.
The book is a review of the scientific literature for the lay reader. Schneider helps us understand the concepts of reinforcers and the variety of behaviors they can shape, including complicated ones. She helps us understand how negative consequences aren’t always, and how positive consequences can be negative.
She shows us that genetics are affected by consequences, and almost in real time, not just through evolution. And while scientists have long known that an enriched, language-filled upbringing is best for young children, they have also determined that enrichment later in life can make up for a young life that missed out. What parent of a kid with autism wouldn’t find hope in that science?
I actually got more out of the chapter on “Thinking and Communicating” and its implications for autism, than I did on the autism section. To wit:
“Simply listening to language is clearly not enough to pick it up. Interactions — and the consequences that necessarily go with them — are critical. For example, a hearing child raised by deaf parents spent most of his time at home. The TV was kept on for him on the theory that this exposure to spoken language would suffice for his language development. By age three, he had readily learned the sign language that his parents used but could not understand or speak English. There had been no consequences for learning English, but there had been plenty for learning sign language.” (p. 151)
So, turn off the TV and create a rich environment for your child.
There are social elements in all language, and Schneider helps us see how that plays out. Requests, for example, benefit the speaker, while descriptors benefit the listener.
I know. Duh.
Bear with me.
When you are putting together a program to help a child with autism learn language, you have to be able to harness scores of facts like that, because as Schneider writes, “understanding what’s happening and why, and taking advantage of all the positive consequences available” (p. 241) is what you need to make that change. As she cautions us, “the basics seem like simple common sense but are not as easy to do as they sound.”
Just ask any parent of a kid with autism.
Sam’s showmanship at Chisholm Challenge
Sam’s equitation ride at Chisholm Challenge
Sam’s trail ride at Chisholm Challenge
Pay it forward awards
From Texas Parent to Parent:
The TxP2P Paying It Forward Awards recognize the best in Family Support for families of children with disabilities, chronic illness or special health care needs. There are two categories: Parent Support Category (support provided by another parent or family member of a child with a disability) and Family Support Category (support provided from professional, service provider or anyone other than another parent). The winning stories will receive a trophy and free registrations to the TxP2P Annual Parent Conference for the winner and the parent who nominated them. First and second runners-up will receive a gift card.
- Write a one-page story about Family Support and include a photograph of your family or child (500 words or less)
- Complete Nomination Form* or attach information onto your story or email
- Mail or email your entry no later than April 1st, 2013
- You will hear from us if your story is a finalist by April 15th and it will be posted on the website for on-line voting that will begin April 22nd
- We will contact you by June 6th if you are one of the two winners or runners-up
- We will announce the winners at the conference on Friday July 26th.
You can submit your nomination online.
“My spaghetti”
I cannot think of a recipe I prepare more inconsistently than a pot of spaghetti, yet it is the comfort food of choice when Michael and Paige come home. The recipe is so simple that when Sam and I want spaghetti, he’s in charge of cooking that night.
Prepare a 1 lb package — unless you have a 12 oz package or a 20 oz package — of whole wheat spaghetti or linguine to the directions on the box. Meanwhile, brown a pound of Italian sausage (turkey, pork, no brand preference, but often buy Owens). Pour off any excess grease before adding a jar of spaghetti sauce (we have no brand preference and often buy whatever is on sale — when Emeril’s Vodka sauce was being discontinued, we ate like kings) and heat until its bubbling. At this point, I have been known to add the last of a leftover can of tomatoes or half a zucchini chopped really fine. You get the drift. Drain the noodles and stir them in. Serve with lots of grated parmesan on top.
Somehow it turns out the same every time.
Overheard in the Wolfe House #220
Peggy: Did you have some breakfast?
Michael (stopping in after an early morning dental appointment): Yeah. I found the spaghetti.
Peggy: Spaghetti?
Michael: There’s nothing like your spaghetti.
Overheard in the Wolfe House #219
Paige: I’m playing Spider Solitaire. It’s like solitaire on steroids.
Peggy: Is that better than regular steroids?
