Sam’s TV Guide
A dear friend visited us last weekend and remarked at one point about how we don’t watch television. That’s not quite true. It is true that we’ve never had cable and now, with all the online availability, we probably never will. When we watch television, it’s deliberate: it’s on for a particular show and then we turn it off when it’s done.
I like to watch the 10 p.m. news and the first part of The Late Show with David Letterman in the evening, and I always holler out when Dave’s ready to read the Top 10 list because Sam enjoys them so much.
Here’s Sam’s T.V. Guide:
- Dancing with the Stars, but after the first few eliminations (“They aren’t that good in the beginning,” Sam says)
- America’s Funniest Home Videos
- Wheel of Fortune
- Saturday Night Live: the opening sketch and Weekend Update
- The weather, especially Ch. 5 Rameisha Shade
- Dave Letterman reading the Top Ten List
I’m not sure what this says, but it says something.
Overheard in the Wolfe House #267
Sam (looking over the many flavors of Blue Bell on sale): sea salt caramel?
Peggy: Sounds good
Sam: I like beach-flavored ice creams
Overheard in the Wolfe House #266
Peggy (looking at Sam’s frazzled face): So you had a rough day, too?
Sam: Yes. But at least I got something done at horseback riding.
Random Thoughts from Possum Kingdom 20K: The Reprise
Run long enough in the woods and the flowers that were budding on the way out will be in full bloom on the way home. When you study the trail map, follow the arrows and let Siri help, a 20K is a real 20K. But after the runners spread out and you are alone in the woods, you will still doubt yourself, although you can hear the birds much better. RunKeeper will tell you the elevations of all four hills you climbed, but it’s best to not know such details until after the race is done. Sand is for horses. But a Bob Ross tattoo on a man’s calf kind of works. Two years of trail racing with RunnerSusan and that jar of honey and organic bamboo shirt still makes excellent swag.
This beauty is just down the road.
And while we were there taking pictures, a guy caught an excellent bass.
Overheard in the Wolfe House #265
Peggy (as Sam set up his phone GPS in his new car dock): Will Siri give us directions?
Sam: Droid doesn’t have Siri, Mom.
Peggy: Debbie then?
Out like a lion
Tomorrow is the first day of April and the first day of autism awareness month. I don’t think I will participate in the blue-washing this year.
This month has been filled with numbers. I was going to funny-blog about one of them — passing the 2,000-mile mark on my running odometer — but now I don’t have the heart.
I distance run because my friend, Susan Sullivan, got sick. She is known to many as Runner Susan, for her running blog that turned into a shale blog for a bit after she got sick. She had to have a hysterectomy because her girl parts were filled with tumors. I told her, when she was recovering, that I would run with her when she got well. I’d already lost some of my girl parts by then. More than two years later and we are still running together.
Ever since Sam was a toddler, I’ve been running a different kind of run with Sam. When he was born, autism was rare, about 1 in 10,000 to 15,000 births. This month, the Centers for Disease Control and Prevention came out with a new estimate: 1 in 68.
That number represents a financial burden that will crush us. The estimated lifetime cost of raising and caring for a person with autism is $1.4 million, compared to about $250,000 to raise a normal child. When today’s kids with autism are adults, there will be just 67 other people for each to help shoulder the burden.
If our kids are the canaries in this coal mine of environmental assaults, this run-away incidence rate clearly hasn’t been the bitch-slap policymakers need. I cannot understand why they can bring themselves to regulate with the precautionary principle sometimes and not others.
If the need is for more immediate threats, like people, even kids, getting cancer, that doesn’t seem to be driving the message home either. In the Virginia Environmental Law Journal, University of Texas professor Rachael Rawlins had things to say this month about the health impacts of shale development on policymakers. The UT press office summed it thusly:
Rawlins examines the Texas Department of State Health Service’s cancer cluster analysis conducted in response to parents’ concerns about seemingly excessive cases of childhood leukemia in the suburban community of Flower Mound. Although the state acknowledged that gas industry emissions include benzene, a carcinogen known to be associated with leukemia, the state dismissed further analysis with a preliminary study after concluding that it was not able to confirm with 99 percent certainty that cancer rates were significantly elevated in Flower Mound, Rawlins writes. Rawlins explains that, even when the state confirmed elevated rates of breast cancer with 99 percent certainty, it was too quick to dismiss the possibility of an association with toxic emissions.
The article reports on a reanalysis of the state’s data prepared by UT Austin researchers in collaboration with Dr. Maria Morandi, a faculty affiliate and former research professor from the Center for Environmental Health Sciences at the University of Montana. The reanalysis found, with 95 percent certainty, that rates of childhood leukemia and childhood lymphoma in Flower Mound are significantly higher than expected; there is only a 1 in 20 chance that the difference is random. In science, 95 percent certainty is considered the norm.
(Oh, yeah, the old breast cancer story. Now where did Josh Fox and the Merchants of Doubt over at the Associated Press move the boxing ring for that story again? Wait, wait, don’t tell me it’s time for my annual defense again.)
I’m feeling dark today. March is going out like a lion and I just don’t feel like lighting it up blue. But you all go ahead and have fun.
Overheard in the Wolfe House #264
(specifically, overheard at the grandparents’ house)
Aunt Chris: Did you see the movie “Frozen”?
Sam: Yeah. It was cool.
Black Bottom Cupcakes
This weekend, probiotic potions practice including starting a batch of soy sauce and making a batch of cream cheese.
The soy sauce will probably be done about Christmas, but the cream cheese is ready to go. I promised Michael some of it would go into an old family favorite, black bottom cupcakes. It’s so yummy. And was as easy to make as yogurt, although there are more complex recipes for cream cheese that are in the queue.
I got this recipe from a co-worker at a summer job I worked between my freshman and sophomore years, in an industrial laundry. And that is another story best told over a beer.
Black Bottom Cupcakes
Cream Cheese topping
1/2 lb cream cheese
1/3 cup sugar
1/2 tsp vanilla
1 egg
1/8 tsp. salt
1 cup chocolate chips
Cake batter
1 1/2 cup flour
1/4 cup cocoa
1 tsp. baking soda
1/3 cup oil
1 cup sugar
1/2 tsp. salt
1 cup water
1 T. vinegar
1 tsp. vanilla
Directions
Beat cream cheese until smooth. Add egg, sugar, salt, vanilla and beat well. Stir in chocolate chips and set aside.
Stir together dry ingredients of cake batter. Add water, oil, vinegar, vanilla and beat well.
Line muffin tins with baking cups and fill half way with cake batter. Top with cheese mixture and bake at 350 degrees for 30-35 minutes.
Probiotic Potion Master (in training)
I wish that the amount of awareness and research into autism and the gut was part of our lives when Sam was a baby.
I can’t help but think things would be different. I touched on some of the problems that emerged when he was a toddler in See Sam Run. But there was never, ever any kind of meaningful conversation with his pediatrician until he reached his teens.
By then, Sam’s food preferences could just as easily fall into the category of an eating disorder as be seen for what they likely were — an adaptation to what gave him bellyaches on a scale that I don’t think the rest of us could tolerate.
But Mark and I were ready to take out a second mortgage on the house so that Sam and I could spend the summer at an in-patient treatment program at Ohio State when Sam was 14 or 15 years old. Sam had shot up at that point, but he wasn’t eating meat. He looked every bit as undernourished as he was, especially his skinny little quads and calves. The program helped get kids with autism to expand their eating choices. Another parent on the autism journey whom I really trust had recommended it.
Fortunately for us, the treatment director recommended that we rule out Celiac disease before we got there, since that was something they typically did before they started treatment anyways. Sam couldn’t eat any gluten for a week before the blood draw, and he got really hungry.
He decided he could eat meat after all. He like sausage the best. He also figured out ways to taste and try new things to decide for himself whether he liked them. We decided that was enough of a breakthrough not to hock the house.
Even though they were able to rule out Celiac, the test results hinted at trouble. We talked about it, but there really was nothing more to be done, the doctor said.
When it was time for him to transition from his pediatrician to the family physician, she asked me if I had any concerns for him. Again, I tried to open the door to talk about his digestive troubles. She said she didn’t know anything about it and that was the end of that.
The issue has re-emerged for him and this time we are going after it a lot more informed. When he was a preschooler and would only eat cereal morning, noon and night, we fortified his milk with l. acidolphilus. I’d always made yogurt over the years, although Sam wasn’t always a big fan. We had some inkling of what needed to be done to help his digestive system, but we didn’t know to what degree.
My first hint, honestly, that there was a much, much bigger world of beneficial bacteria out there was when my daughter, Paige, started making us kimchi and told me it was a health food.
Light bulb.
So, now we are all about the fermenting here at the Wolfe House. I started with Creole cream cheese. I tried not to channel my home economics teacher as I sat that milk out on the counter for a day and half. But it was wonderful. I made crepes and filled them with the cheese topped them with warm strawberry jam. Sam likes cheesecake so I thought it wouldn’t be too much of a reach, but it was. Oh, well, more for Michael and me.
Plus, I had a whole bunch of the kind of whey the author of Mastering Fermentation likes to use in her recipes. Next up was probiotic ketchup (a hit) and hummus (good, but a miss for Sam.)
When we make our salad dressings now — Sam is a huge salad fan — we use vinegar with the mother. (Just Google it. The point is to eat food that’s alive.)
Judy Thurston over at Hidden Valley Dairy suggested keifer (another hit) and I just ordered supplies I need to make soy sauce and regular cream cheese.
I want to get good at making cheese so that I can make the one he loves: Parmesan.
I’m still working on getting supplies for what I’m sure will be a big hit when I get it done: salami.
No kidding, it’s fermented. Is that why sausage was the breakthrough for him 10 years ago?
Well, back to the kitchen. Got more potions work to do.
Overheard in the Wolfe House #263
Sam: By the way …
Peggy: What?
Sam: Do you want to know something?
Peggy: Yes, I do.

